Meet Malignant Germ Cell Tumor

Ayah tak tau nak explain but this is Maktam's explaination:

The whole thing yang besar to liver.

The left side tu yang lain sikit bulat tu tumour.

Go down lagi nampak left kidney dulu sebelah tulang spine tu.

Below is the radiologist report.

The tumor size is 10 X 11 X 9cm. How big? According to Maktam it's as big as Sarah's head.

More stories at Doa dan harapan untuk Dhia Maisarah.

Update 26 Jan 2011 @ 7:00pm - Day 6 @ SDMC

Tengah melukis

1st session chemo regime :

Blemycin 7.5mg 1 hour

Etoposide 60mg 1.5hr

Mannitol ~ 3hrs

Cisplatin 60mg 24hrs plus Calcium and Magnesium 48hrs

Potential Side effect (can be immediate, can be after few days) :

1. Appetite loss

2. Hair loss

3. Nausea/vomitting

4. Bone marrow supression

.

.

.

This list is not exaustive.

Alhamdulillah so far Sarah cope quite well with the chemo.

What mama dan ayah worry is she don't want to eat. Even her milk intake also is a bit reducing today. Everytime we offer food her answer is "I don't want!".

In a way mama dan ayah suka bila dengar "I don't want!" Sarah; sebab tu menunjukkan Sarah stubborn, fighting spirit is strong.

Be strong always Sarah. Insyaallah.

Update 25 Jan 2011 - Day 5 @ SDMC

Prof Dr Lin informed that the 1st session chemo will start tomorrow. It'll be BEP or BET and platinum. This is not so strong chemo but the platinum can be harmful to kidney and also hearing.
The 2nd session chemo will be the strong chemo.
And after every 2 session Sarah hearing and kidney will be checked.

Ya Allah, kau berikanlah kekuatan kepada Sarah ya Allah!

Doc also said there is high possibility the germ can relapse (appear again) in the future. And most likely place it will appear is ..the brain. Masyaallah.

Jadi for future refernce, CT scan untuk brain was also done.
Lepas scan sepatutnya hearing test, tapi Sarah tak cooperate sgt so kena buat masa dia tido.
Sarah masuk OT pukul 3 untuk masukkan chemoport. Kat situ masa dia tido, hearing test was done.

Balik ke bilik, nurse start drip termasuk some albumin.

Sarah minum susu, better than semalam. Dan makan ikan goreng, boleh tahan banyak.

Back at home Awish dan Mina are babysit by Makcek & Sufiah.

Ya Allah berikan kekuatan kepada kami sekeluarga menempuh dugaanMu ya Allah!

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Stage 4

Ini je antara kata2 yang ayah ingat daripada kata2 doktor yang banyak2 tu.
"....some more this is already stage 4..."

Ini yang kata kata yang paling terngiang-ngiang. Kata kata yang buat Ayah dan mama speechless. Kata kata yang menitiskan airmata mama dan ayah. Kata kata yang membuat ayah memandang jauh keluar tingkap tanpa sebarang makna. Kata kata yang membuat ayah berjalan mundar mandir sepanjang wad tanpa hala tuju.

Ayah dan mama understand now, kenapa doktor2, both paed & onco, macam berat nak cakap.

"it's malignant germ cell tumor.."

"the tumor is..verrry big.."

"Alphafetoprotein is very very high"

"the good news is this cancer is very responsive to chemo"

Kini ayah dan mama berpegang pada kata kata yang akhir.

Ya Allah, kuatkanlah kami sekeluarga untuk menempuh dugaanMu.

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Germ Cell Tumor & the five Procedure

Which is which?
After neuroblatosma, nephroblatosma, now germ cell tumor. Diagnosis still not completed.
Which one is better? None. Not for Sarah.

To know which one, tomorrow, 5 procedure will be done on Sarah :
1. Bone merrow aspiration
2. Liver biopsy
3. Tumor biopsy
4. Lumbar puncture
5. Hepline

Just get it done and cure Sarah.

Ya Allah, sembuhkanlah Sarah..

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Nephroblastoma??

The truth has not really sinked in. How ayah wish tomorrow when ayah wake up, this is just another bad dream.

Ayah ajar abang Awish doa lepas sembahyang - 'Ya Allah, aku merayu kepadaMu, kau sembuhkanlah penyakit adikku Dhia Maisarah, ya Allah yang maha agung.'

Sarah you are a fighter. Be a strong fighter. Doa ayah, mama, abang, dan semua yang menyayangi Sarah akan membantu Sarah.

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Sarah Part 4 : Menonggengs Tidosa

Menonggeng Tidosa = Tido menonggeng.

Rasanya dia tengah mimpi merempit. Tengok tangan tu, macam pulas handle motor. Kaki pulak silang macam buat aksi superman. Mata tutup sebab angin kuat..motor laju la katakan..